Useful Links - Information

General Disability and Special Needs Information

Ableize Disability Directory Resource directory of UK adult and children's disability services. Includes advice and information, access, recreation and sports, plus the arts and education. Also includes information on specific disabilities and updated news.
ACT Act campaigns for coordinated services for equal access to specialist skills and support needed by children with a life threatening or terminal condition and their families.
BILD (British Institute of Learning Disabilities) Working to improve the lives of people with a learning disability
Check the Map Local learning disability services listed
Special Needs Kids Information directory and shopping site to help parents/carers of children with special needs
Door to Door Information about transport for disabled and less mobile people, using all forms of transport.
Face to Face Network of trained volunteer befrienders, all who are parents who have a child with a disability and so understand what you are going through.
One Parent Families Information no-site for lone parents with a special needs child.
Cedar Foundation Information and support that promote choice, opportunity and inclusion
Young Minds Improving mental health and emotional wellbeing of young people. Extensive range of information on numerous topics and support for young people, parents and professionals
Disabilities in the UK This Site has been created to assist in the effort to improve the inadequate provision of Special Needs Education Facilities in the UK.
Association of Wheelchair Children Helping children with wheelchairs to become independently mobile.
Dogs for the Disabled Train dogs to help disabled people live life more independantly
Carers and Disabled Children Act 2000 Details of the Carers and Disabled Children Act 2000 and links to other Acts.
Catalyst Education Resources Limited Our goal is to provide up-to-date, useful information for all those who work with special needs children and adults, all over the globe, whether parents, teachers or other professional carers.
Children Act 1989 - Children Act 1989 and links to other Acts.
Children's Rights Alliance for England CRAE is an alliance of over 250 organisations committed to children's human rights. We exist to improve the lives and status of all children in England through the fullest implementation of the UN Convention on the Rights of the Child.
Askability Current affairs in symbol form for children
Community Care (Direct Payments) Act 1996
Don't Stick It - Stop It Mencap animated site developed to help children realise the impact of bullying and how to stop it.
Disability Discrimination Act 1995
Child Death Helpline Telephone helpline for anyone affected by the death of a child of any age, from pre-birth to adult, recently or long ago.
Disability View Disability View magazine online.
Special-abilities.net Information, advice and support for parents of children with disabilities.
Disability Law Service "The Disability Law Service is a national registered charity that provides confidential and free legal advice for disabled adults, their families and carers. DLS also provides disabled people with a casework service."
Henry Spink Foundation The Henry Spink Foundation is an independent charity created to help families of children with severe disabilities of all kinds. We provide information on conventional and complementary/alternative medicine, therapies and research relating to a very wide range of physical and mental disorders. "
The Thomas Charles Trust The Thomas Charles Trust started as the The Thomas-Hannah Appeal in November, 2003 to support young adults with Profound and Multiple Learning Disabilities (PMLD) as they leave the state education system. " ."
Elizabeth Nuffield Educational Fund A guide to support for carers wishing to return to education. .
The Audit Commission This project examines services for disabled children, young people and their families in England and Wales.
The Disability Archive UK The aim of the Disability Archive UK is to provide disabled people, students and scholars with an interest in this and related fields, access to the writings of those disability activists, writers and allies whose work may no longer be easily accessible in the public domain.
Disability Now The online newspaper campaining for disabled people.
Disability Rights Commission Lots of information and help on disability rights issues.
Childrenwithspecialneeds A US site with some useful info, including PECS and growth charts.
Right From The Start Promotes good practice in sharing the news of a child's additional needs to ensure that disabled children are valued and their parents are treated with respect.
The Cinema Exhibitors Association Card Details of the card available to carers to be admitted to the cinema free when accompanying a disabled person. Also details of who to apply to.
The Right to Swim Campaign "If you have reached this website then the chances are you and your children have been excluded from swimming at your local public swimming pool."
Waving not drowning This is a project for parents who work, or want to work, and who have children with disabilities.
The Foundation for People with Learning Disabilities "The Foundation for People with Learning Disabilities works with people and their families to ensure they can use effective services, play a fuller part in communities and society, and enjoy equal rights."
Tree of Hope "The Tree of Hope offers hope to the families of sick and disabled UK children who need specialist surgery or additional medical treatment and therapy, in order to save their lives, and to give a better quality of life, and to help free them from suffering, by funding the treatment required."
AvMA - Action against medical accidents "Action against Medical Accidents (AvMA) is an independent charity which promotes better patient safety and justice for people who have been affected by a medical accident. A 'medical accident' is where unintended harm has been caused as a result of treatment or failure to treat appropriately. This includes where the care has been negligent, but does not necessarily mean that it was. AvMA believes that whatever the cause of a medical accident, the people affected deserve explanations, support, and where appropriate, compensation. Furthermore, we all deserve to know that the necessary steps will be taken to prevent similar accidents being repeated. "
After 16 A great site for teenagers and young people in the UK who have an impairment or disability and are wondering what opportunities and services there should be when they leave school. Also for parents, carers and professional workers will probably want to use it too!
Interconnections Electronic Bulletin An independent service which focuses on children with complex needs and their families. Organises seminars, publishes manuals and more.
KIDS Dedicated to helping disabled children to get the most out of life.
MUMSNET By parents - for parents, this site has a wealth of information and helpful advice on all aspects of parenting. Mumsnet is an online network of parents pooling their knowledge on everything from how to get a baby to sleep through the night to the best places to go on holiday with a five-year-old. Visit mumsnet for advice, tips and product recommendations from the people who know best, other parents.

Help with Claiming Benefits and Getting Support

Audit Commission Helpful advice and tips for claiming Disability Living Allowance.
Rightsnet Benefit and tax credit information
BHAS Helpful guide for claiming Disability Living Allowance.
Step by Step "A support brokerage company working for people with disabilities. Independant from Social & Health Services, to help you work out how to get access to the money to manage your own support and also help you get your own home if that is what you want"
Benefits Now Disability Living Allowance and Attendance Allowance Self-Assessment and Information Service
in Control About disabled people getting control over their support and their lives
Department of Work and Pensions Lots of information about lots of different benefits.
Directgov Directgov is the place to turn to for the latest and widest range of public service information from the UK government.
HM Revenue and Customs - previously Inland Revenue Tax advice as well as details of Working Family Tax Credits and Child Tax Credit.
Cerebra - Disability Living Allowance Guide Guide to claiming disability living allowance for a child.
Entitled To.Co.Uk A site that helps you to work out what benefits you or your child may be entitled to

Organisations to apply to for funding for items for your Special Needs Child

3h Fund Grants towards a holiday
Action for kids Charity providing mobility aids, work related learning and family support services.
BDF Newlife provide child and family grants
Victoria and David Beckham Children's Charity Provide grants for equipment
The Frank Buttle Trust Grants for children in need.
Caudwell Charitable Trust Funding therapy, treatment, holidays and equipment.
Cerebra Offering grants, parent support, advice, research holiday home, postal lending library, sleep solving, personal portfolio/passports.
Children's Hope Foundation Offer assistance by providing equipment, holiday's etc. for an individual or groups.
Children Today Provides grants for specialized equipment
Cobwebs Foundation Provide holidays and purchase equipment
Comedians Golfing Society Provide specialised equipment
Dreams Come True Making dreams of terminally or seriously ill children become reality.
The Elifar Foundation Provide grants for specialised equipment and therapies
The Family Fund Provide grants to families with severely disabled children based on families needs
Footsteps Foundation Charity providing grants for children to take part in the Footsteps Centre innovative physiotherapy programme
Get Kids Going Provide wheelchairs and trikes to be able to participate in sport
Lifeline 4 Kids Provides essential equipment to individuals and groups.
Make a Wish Foundation UK Grants magical wishes to children and young people fighting life-threatening illnesses
REACT Charity Support, information, backing research, educational projects and funding a wide range of equipment and holidays for children with potential terminal illness.
SSSFA applicable to children whose parents have or are serving in the Forces.
Variety Club Donate specialist equipment to the individual and to groups.
When You Wish Upon A Star Grants wishes for children suffering from life limiting illness.
Whizz kids Provide mobility equipment, advice and training.
Local organisations to contact:
Lions Club
Round Table
Rotary Club

Siblings/Young Carers

Sibs Information and support for sisters and brothers of all ages of special needs children and adults.
Winston's Wish Helping children with advice, support, children's forum etc. after the death of a parent or sibling.
Young Carers Information, advice and forums for young carers.
Young Carer Support and Information for young carers.