Conditions & Therapies Links & Resources
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| Dietary | Epilepsy | Support - Visually Impaired | Support Groups & Information on specific conditions |
| Therapies | Sensory Therapies | Communication | General Medical Information |
Dietary
| Autism Medical | An independent website evolved from the dovetailing of two innovative UK charities, Allergy induced Autism and Visceral, both dedicated to the investigation and treatment of dietary, gastrointestinal and immune issues in autistic spectrum disorders. |
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| Coeliac UK | Coeliac Uk helps those who are on a gluten free diet and their families. |
| D and D Chocolate | range of dairy and gluten free confectionary |
| Dietary Needs Direct | Large range of foods to suit all diets |
| Doves Farm | Gluten free and organic foods. |
| Especially Delicious | Gluten free food for special occasions and treats. |
| Gluten Free Foods Direct | Online shop for Gluten free food. |
| Gluten Free | "This site has been put together by a mother of a son who has to follow a Gluten Free diet, but who is not a Coeliac, and sheis not a medical person. The information contained within this site is her understanding of the books, internet sites and other factualinformation she has read over the years, while she has been researching what is involved in following a Gluten Free diet and from this tounderstand how it can be best applied to her son's needs." |
| Goodness Direct | Food supplier with lots of natural foods and foods suitable for those on special diets. |
| Innovative Solutions | Supplier of flour to suit different diets for baking |
| Mrs Crimbles | Mrs Crimbles are Britain's fastest growing wheat, gluten and dairy free - Free from - company. Our gluten free cakes, bread and biscuits are made to the highest standard making them products you can trust |
| Nutrition and Allergy Clinic | "The Nutrition and Allergy Clinic is a busy clinic, which deals with allergies and food sensitivities, as well as a variety of other conditions." |
| Nutrition point | A very useful site for people on a gluten free diet. Lots of information here. |
| Plamil Foods | Chocolate and carob suitable for a wide range of intolerances |
| Supplementary message board | Another message board with information and help for people on a gluten free diet. |
| The Gluten Free Message Board | A message board for people on a Gluten free diet. |
| Trufree | "At last the delicious foods you love without the irritating aftereffects. Trufree's wide range of wheat free and glutenfree foods mean cakes, biscuits, bread and pasta can stay on the menu. Plus, many of our products are also milk and egg free." |
Epilepsy
| Epilepsy Action | A wonderful site full of useful information about epilepsy and living with epilepsy. |
| Epilepsy Circle | A good site for information and chat. |
| Epilepsy Foundation | "The Epilepsy Foundation will ensure that people with seizures are able to participate in all life experiences; and will prevent, control and cure epilepsy through research, education, advocacy and services." |
| Matthews Friends | Support and help for people using the Ketogenic Diet to help control epilepsy. |
| National Centre for young people with epilepsy | Information regards complex epilepsy and other neurological conditions |
| National Society for Epilepsy | Information and support for people with epilepsy |
| PokweUK | Parents of kids with epilepsy - A useful site and support group for parents of kids with epilepsy. |
Support and Resources for the Visually Impaired
| Action for Blind People | Advice and support for blind and partially sighted people |
| Calibre | "Calibre is a registered charity, set up in 1974 to provide a postal lending library service to people who cannot read ordinary print books because of a sight problem or other physical disability. The service is free to members - we do not charge a subscription - so we rely on help to maintain and expand the service." |
| Clear Vision | Postal lending library of mainstream children's books with added Braille. |
| Large Print Books | Children's large print books |
| Listening Books | "Listening Books provides a postal audio book library service to people who cannot read in the usual way. It is the only national audio book charity catering for the full range of print impairments and our membership is comprised of those with visual impairments, learning difficulties such as dyslexia and physical impairments that mean a person cannot easily hold a book or turn a page." |
| National Blind Childrens Society | Large print books for visually impaired children. |
| Royal National Institute of the Blind | "Our pioneering work helps anyone with a sight problem - not just with braille, Talking Books and computer training, but with imaginative and practical solutions to everyday challenges. We fight for equal rights for people with sight problems. We fund pioneering research into preventing and treating eye disease. Our projects such as Talk and Support, Low Vision centre and Parents' Place make a difference to people's lives." |
| Sense | Support services and information for deafblind or associated disabilities |
| Ulverscroft | Large print and audio books, no children's section again. |
| Visual Impairment Scotland | Aimed at Visually Impaired children and their parents in Scotland |
Support Groups and Information on Specific Conditions
| Ability Online | An internet community where children with special needs can meet friends and more. |
| Addiss | Information, support and resources |
| APDUK | Information about auditory processing disorder (APD) |
| ASBAH | Information and advice about spina bifida and hydrocephalus. Offering support from pre-birth, around birth or diagnosis of disability onwards. |
| Apraxia Kids | Information about childhood apraxia of speech and how to get help. |
| Aspergers and ASD Forum | Forum offering help support and friendship |
| Autism Buddy | AutismBuddy aims to provide a user-friendly website that provides high quality printables and resources for teachers and parents for use with autistic children. |
| Brain Talk Communities | An amazing array of forums for many different disorders, many not what you'd expect to find. Well worth a look. |
| Brookdale Care | "Brookdale Care is a specialist provider of Autistic Spectrum Disorder residential care homes and independent hospitals across Hertfordshire, Bedfordshire and Cambridgeshire. " |
| Challenging Behaviour Foundation | "The Challenging Behaviour Foundation exists to demonstrate that individuals with severe learning disabilities who are described as having challenging behaviour can enjoy normal life opportunities when their behaviour is properly understood and appropriately managed, and to support parents and carers through education and information to enable this to happen." |
| Cerebra | Information and support for families of children with brain damage and brain related conditions. |
| Contact A Family | The Contact a Family website is for families who have a disabled child and those who work with them or are interested in getting in contact with other families with chldren with similar conditions. |
| Child Growth Foundation | Information and support for those affected by growth related problems |
| Downs Syndrome | Information and support for downs syndrome |
| The Dyslexia Institute/Action | Information on Dyslexia and literacy difficulties and where to go for help. |
| Ehlers-Danlos Support Group | Information and support to people with ehlers-danlos syndrome and their family. |
| Families of Children with Special Needs Yahoo Group | |
| Femoral Hypoplasia-Unusual Facies SyndromeS Support | This site has been created by a parent of a child with FH-UFS and explains what FH-UFS is and how they are coping with a child with the syndrome. |
| Friends of Carers Yahoo Group | |
| Friends of Disabled UK | A yahoo group for those with disabled friends |
| Heartline | "We are a voluntary organisation set up to offer help and support to children with heart disorders and their families regardless of how slight or severe the condition may be." |
| Hyperactive Children's Support Group | Information and support regards hyperactive children |
| Little Hearts Matter | "Little Hearts Matter is the national voice for families where a single ventricle heart condition, such as Hypoplastic Left Heart Syndrome, Tricuspid Atresia, Double Inlet Ventricle or Pulmonary Artesia has been diagnosed. The charity works with medical and social care teams to offer a multi-disciplinary approach to the support and information needed by this group of people and their carers." |
| L.O.A.D.S. | A charity providing support for parents of children with Downs Syndrome in Essex and Suffolk. Plenty of info too for anyone from any area. |
| Making Contact | "As a project of Contact a Family, Making Contact.org compliments our existing services and gives you the chance to safely and easily get in touch with others who are affected by the same or similar disabilities and medical conditions as you are." |
| National Autistic Society | Information and support for autism |
| ITP Support Association | "The ITP Support Association is a UK registered charity which aims to promote and improve the general welfare of patients, and the families of patients, with Idiopathic Thrombocytopenic Purpura." |
| Kith and Kids | Offers support and practical help for disabled children and their families |
| Lowe Syndrome Association | The LSA is an international, voluntary, non-profit organization made up of parents, friends, professionals, and others who are interested in Lowe syndrome, a rare genetic condition that affects boys. |
| PARIS | Public Autism Resource and Information Service. Provided by the National Autistic Society, this site is a wonderful resource for finding information on services. |
| Rett Syndrome Association UK | "We are a national charity. We offer information, advice, practical help, friendship and support to people with Rett syndrome, their families and carers." |
| Restricted Growth Association | "RGA is a self-help organisation concerned with alleviating the social and medical consequences of restricted growth. The Association promotes the interests of people of restricted growth and their families. It is a forum for the exchange of information and advice and offers mutual support and encouragement. Publications include advisory booklets and a quarterly newsletter." |
| Scope | Information and support for cerebral palsy |
| Sensory Processing Disorder | Information and support about sensory processing disorder. |
| Sibs | Sibs is for people who grow up with a brother or sister with special needs, disability, chronic illness. Provide factsheets, workshops, website and groups for siblings |
| Signpost | Information and support for families of children and young people affected by disability or special needs across West Lothian. |
| Special - abilities.net | A site with lots of useful information for parents and professionals. |
| The Fragile X Society | Information and support for Fragile X families and carers. |
| The Hypermobility Syndrome Association | Support and information to those affected by hypermobility syndrome and their family. |
| Unique Rare Chromosome disorders | Information and support given far any rare chromosome disorder |
| UK Congenital Hypotonia Website | Information and support for parents of children with Hypotonia. |
| UK Parents | Online parenting community, has sections on special needs. |
| We Move | Information about movement disorders. Includes a good section about Ataxia and a discussion forum for parents. |
Therapies
| Bibic (British Institute for Brain Injured Children) | Therapy programme that parents are taught to implement at home after assessment |
| Bobath Centre | "The Bobath approach to the management of children with cerebral palsy was pioneered and developed by Dr Karel and Mrs Berta Bobath. Begun in the 1940's the Bobath Concept is now well known and accepted in many countries as one of the leading approaches.The main aim of treatment is to encourage and increase the child's ability to move and function in as normal a way as possible. More normal movements cannot be obtained if the child stays in a few positions and moves in a limited or disordered way. The aim of management is to help the child to change his abnormal postures and movements so that he or she is able to comfortably adapt to the environment and develop a better quality of functional skills." |
| BIRD | 'Developmental Reflexive Rehabilitation', used to treat a variety of conditions, consists of a series of movements which facilitate neurological feedback to the brain. |
| Paediatric Osteopathy | Gentle manual techiniques using non-invasive rebalancing procedures |
| Paul Skidmore Therapies | Based in Oxfordshire, four clinics that offer therapy treatments for bone related and musculoskeletal conditions such as brittle bones. Nationally recognised as disability specialists. |
| Edulink | Technological solutions for a hearing impairment |
| Footsteps | Physiotherapy centre based in Oxfordshire providing intensive physiotherapy for children with neurological conditions to maximise their physical abilities. |
| Henry Spink | Information on lots of conventional and complementary/alternative therapies and research. |
| Institute for Neuro-Physiological Psychology | Treat symptoms of neuro developmental delay by identifying the sources of the problem |
| The Craighalbert Centre | The Scottish Centre for Children with Motor Impairments, known as the Craighalbert Centre, is Scotland's national centre for young children with cerebral palsy. |
| The Dore Programme | Exercise treatment, devised to help children and adults affected by learning difficulties associated with dyslexia, dyspraxia or ADHD. |
| G Therapy | "G Therapy is a pioneering treatment for a variety of Neurodevelopmental disabilities like Cerebral Palsy, Mental Subnormality, Autism, Down Syndrome, Global Delays, etc., invented by Dr. Gunvant Oswal." |
| MOVE Europe | Teaching skills of sitting, standing, walking and transferring by following a programme, focusing on a team approach, involving all people who work with the child. |
| Island Dolphin Care | A charity in the US which arranges for disabled children to swim with dolphins. |
| The Movement Centre | Assessment, treatment, research and development of methods to improve movement control in children with cerebral palsy. |
| Miller Method | "A Cognitive-Developmental Systems Approach for Children on the Autism Spectrum." |
| International Peto Institute | "Physician and educator András Pető developed his conductive educational system after World War II, in 1945. His method opened up a new way for the rehabilitation of motor disordered children and adults whose dysfunction was due to damages to the central nervous system. His approach was first taught and practiced in the Institute named after him, and has made a serious impact all over the world." |
| Riding For The Disabled | RDA is dedicated to ensuring that all our riders and carriage drivers receive a high standard of professional tuition tailored to their personal ambitions and capabilities. Our instructors work closely with physiotherapists and other health professionals to encourage every individual to aim for attainable goals – some modest, others far more ambitious. |
| The Alexander Trust | Previously a charity, this site is run to provide information for parents of children with special needs. Good links including good information on Dolphin Therapy. |
| The PACE Centre | Positive Achievement inspired by the principles of Conductive Education. The PACE Centre was founded in Buckinghamshire in 1990 as a partnership between parents and professionals. It provides intensive learning programmes, tailored to the individual needs of children with motor impairments aged 6 months to 12 years. |
| The Rainbow Centre | "The Rainbow Centre exists to enable children with cerebral palsy and their families, to benefit from Conductive Education. Developed over the last 50 years, until recently, Conductive Education was only available at the Peto Institute in Budapest. The Rainbow Centre was established in 1990 to provide this special system of learning without the need to travel to Hungary. Since 1990 The Rainbow Centre has helped over 150 children from 7 of the southern counties." |
| Conductive Education Online | This site has loads of information on conductive education along with links to other sites and a discussion forum. |
| Association of Professional Music Therapists | A good place to start if you're interested in finding a therapist or just interested in music therapy. |
| British Society for Music Therapy | Lots of good information about music therapy. |
| Nordoff-Robbins Music Therapy | "Nordoff-Robbins Music Therapy supports a wide range of music therapy projects across the UK. These include self-contained music therapy units, assisted projects and supported projects." |
| Richmond Music Trust | "Richmond Music Trust was established as a music education charity in April 1994 to provide a range of high quality musical and educational opportunities for the benefit of young people and others in and around the London Borough of Richmond upon Thames. On this website you will find all you need to know about getting your child or school involved in making music." |
| Autism Treatment Center of America | Home of the Son-Rise Program. |
| The Elizabeth Svendsen Trust | "Our aim is to bring enjoyment and pleasure into the lives of children with special needs and disabilities and to give them the satisfaction that comes with the achievement of learning riding skills. This can only be achieved with the help of our specially trained EST donkeys, our wonderful volunteers and the teams of dedicated staff at our Sidmouth, Leeds, Birmingham and Manchester Centres. " |
| OTIP | Occupational Therapists in Independent Practice. A site to help you find an OT working in the private sector. |
| The Brainwave Centre | Offers therapy for Children with Developmental Delay whether caused by Cerebral Palsy, Genetic Disorder or Brain Injury |
Sensory Therapies
| Sensory Plus | Sensory toys and equipment |
| Hawkins Bazaar | Rainbow maker and other bits and bobs that can be used as sensory toys. |
| Mike Ayres Design and Development | Mike Ayres Design and Development Ltd., England is a leading company for play and therapy equipment for children and adults with special needs. The company specialises in the design, provision and installation of both Multi-Sensory and Soft Play environments to suit clients' particular needs. |
| Optimusic | Light beams that make sound when they are broken, so anyone who can move can make music. |
| Pedlars | Another supplier of the rainbow maker. |
| Rompa | Toy supplier that also has a range of sensory play equipment. |
| tfh | supplier of special needs toys and sensory equipment. |
| SpaceKraft | A big range of sensory equipment,switches and wooden toys. |
| Mathmos | A great supplier of sensory equipment for indoors and outdoors. |
Communication
| 1 voice | Support and information network for families involved in the use of a communication aid |
| Aidis Trust | Aid communication through technology by information, help and support given |
| Ability Net | Adapting and adjusting information and communication technology for individuals |
| AFASIC | "Across the Uk the lives of over 1 million children and young adults are affected by the hidden disability of speech,language and communication impairments. Afasic is a charity, established in 1968, to help these children and young people, their families and the professionals working with them." |
| Communication Matters | Information regards (AAC) augmentative and alternative communication |
| Videos of Sign Language | A useful site of sign language in use, handy for people learning to sign. |
| Beyond Autism | Another great source of symbols, other communication resources and many links. |
| Do2Learn | "Games, songs, communication cards, print resources, and information for special,needs." |
| Makaton | Information and resources for Makaton signing and symbols |
| Signalong | Signalong is a sign supporting system based on British Sign Language. It is designed to help adults and children with communication difficulties often assocated with learning disabilities |
| PECS | Pyramid Educational Consultants - "We are the UK branch of Pyramid Educational Consultants. The parent organisation was established in the United States over 8 years ago by Andrew Bondy PhD (Clinical Psychologist), and Lori Frost MS.CCC/SLP (Speech and Language Therapist) to develop services that focus on the design of effective educational environments and emphasize the initiation of communication." |
| The Nuffield Speech and Language Unit | A specialist service for children aged 4 - 7 with very severe speech and language disorders in London. |
| The CALL Centre | "The CALL Centre (Communication Aids for Language and Learning) provides specialist expertise in technology for children who have speech, communication and/or writing difficulties, in schools across Scotland. In this website you will find information, guidance and resources on how Information and Communication Technology (ICT) can make a major impact on the education of children and people with disabilities or special educational and communication needs." |
| I CAN | "I CAN is the charity that helps children with speech and language difficulties across the UK. The charity works to create a society where their special needs are recognised, understood and met, so that they have the same opportunities in life as other children." |
| Talking Point | "Talking Point is about speech, language and communication difficulties in children. We have a range of information and resources for parents and carers of children and also for professionals." |
| Symbol World | A website full of resources for symbol readers. |
| Widgit | Special needs software supplier with a good range of communication products. |
| Kapitex | Equipment and information on Dyspyagia and Oral Motor Exercise. |
General Medical Information
| Action for Sick Children | Information for different aspects of childrenÕs healthcare issues |
| Childhood constipation | How to recognise and treat constipation in babies and children. |
| Children First | NHS online child centred health and hospital resource offering age appropriate information |
| Clinical Knowledge Summaries | NHS funded resource provides access to clinical knowledge about health |
| ERIC (Education and Resources for Improving Childhood Continence) | information and resources regards continence |
| Medikidz | Medical education publisher, explaining medicine to young people in a way they understand. |
| NHS Direct | NHS Direct Ð 24 hour health care Ð online information or telephone 08454647 |
| NHS Choices | Information on all aspects of health care and finding health services. |
| GP Notebook | A UK medical encyclopaedia. |
| Planet Amber | "PlanetAmber is in the later stages of development as a global information source for people with health impairments, their families and for those who provide services and support." |
| NICE | "NICE (National Institute for Clinical Excellence) is the independent organisation responsible for providing national guidance on the promotion of good health and the prevention and treatment of ill health. " |
| Medicines | "Medicine Guides are a new information source for members of the public who are looking for medicines information that is reliable and understandable. Currently we have Medicine Guides for epilepsy medicines, those taken or vaccinated for influenza and medicines used to manage cholesterol and triglycerides." |
